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ME/CFS Organisations
MEActionUK

Comprehensive, informative and active site at the cutting edge of asking important questions about ME/CFS, with the aim of better understanding and recognition of the huge problems of ME/CFS. Useful, no-nonsense advice on where to get help and with a finger on the pulse of what is happening in the world of ME/CFS. Campaign-based organisation.

E-mail enquiries: stephen.e.ralph@btinternet.com

Website: www.meactionuk.org.uk


U.K. People Support CFS ME

An online support group for people with ME-CFS and their carers. This network includes a newsgroup and chat room and a guide to dealing with the illness. There is information on individuals in various parts of the UK who suffer from and can offer a friendly voice in the bad times.

E-mail enquiries: webmaster@upscm@upscm.fsnet.co.uk

Website: www.upscm.fsnet.co.uk


M.E. Association

The M.E. Association is one of the major charitable organisations in the U.K. looking into improving the understanding and awareness of the disease. Annual membership is currently 15 and entitles the member to access to the "Listening Ear" phone service and to receipt of a quarterly magazine. The M.E. Association aims to support and promote research projects whenever possible.

Address: 4 Corringham Road, Stanford-le-Hope, Essex, SS17 0AH. Telephone: 01375 642466. Fax 01375 360256.

E-mail enquiries: enquiries@meassociation.org.uk
Website address: www.meassociation.org.uk


Action for M.E.

Action for ME is a national charity which campaigns to improve the lives of those suffering from ME in the UK. It is a membership-based organisation that is supported purely through donations from individuals, businesses, trusts and local support groups.


Address: PO Box 1302, Wells, Somerset, BA5 2WE. Telephone: 01749 670799

Website address: www.afme.org.uk


Chronic Fatigue Webring

A webring designed to accommodate people wishing to make contact with fellow sufferers and to disseminate information about the disease.

Website address: www.geocities.com/sharonandandy2001


Association of Young People with M.E.

A UK-based charity set-up to help children and young people with ME. The activities and services offered are all run by young people themselves. Membership entitlements include a regular magazine, contacts to other young people through the pen-pal or e-mail schemes, support and advice for parents as well as advice on education issues.

Website address: www.ayme.org.uk


Befriending M.E.

An project funded by the Prince's Trust millenium awards scheme, based in the Scottish Borders, specifically aimed at young people.

Website address: www.befriendingme.org.uk


Other useful ME links

Chief Medical Officer's Working Group on ME/CFS

Youngactiononline.com

CFS Research - on-line survey for ME/CFS sufferers

Westcare UK - provides services for sufferers and health professionals; based in Bristol

Independent ME Groups Alliance - share views, news and info on this newsgroup

ME Chat - mailing list tailored towards the interests of sufferers living in the U.K.

Community Care - links to loads more ME/CFS-related sites



Disability Organisations


Disability Alliance

Organisation committed "to breaking the link between poverty and disability". Provides information to disabled people and campaigns for improvements in disability benefits and legislation to reflect the true cost of disability. They produce a "Disability Rights Handbook" which is invaluable for anyone needing information on benefits, lifestyle and employment issues

Address: Universal House, 88-94 Wentworth Street, London E1 7SA. Telephone: 0207 247 8776. Advice line: 0207 247 8763

Website address: www.disabilityalliance.org


RADAR (Royal Association for Disability and Rehabilitation

An organisation that covers many areas of disability including civil rights, legislation,education, employment, social services, social security, mobility and housing issues. Regularly publishes a directory for support and assistance.

Address: 12 City Forum, 250 City Road, London, EC1U 8AF. Telephone: 0207 250 3222.

Website address: www.radar.org.uk


Other useful disability sites

disability.gov.uk - UK government info on disability rights and issues

disabilitybenefits.co.uk - info on benefits for the disabled and elderly

Yourable.com - info on work, money, equipment, travel, health and learning



Open and Distance Learning Organisations


The following is a list of links to sites dedicated to helping people learn new skills and follow educational courses that they might otherwise be unable to do because of disability.

Open University

Large organisation offering a whole range of courses. Has a specific office dealing with students affected by disabilities.

Address: Central Enquiry Service, PO Box 625, MK1 1TY. Telephone: 01908 244066.

Website address: www.open.ac.uk

E-mail address: osdwh@open.ac.uk

National Extension College

Established in 1963 this non-profit, independent educational charity supplies learning resources and opportunities to help students achieve vocational and personal goals. Has over 150 courses at all levels, ranging from counselling to computing, and 15,000 students. Provides advice and feedback to students.

Address: 18 Brooklands Avenue, Cambridge, CB2 2HN. Telephone: 01223 316644.

Website address: www.nec.ac.uk


Open and Distance Learning Quality Control Council

Regulatory organisation with lists of accredited correspondence colleges and other organisations providing courses and tuition. They also produce a directory with relevant details on all colleges.

Address: 27 Marylebone Road, London, NW1 5JS. Telephone: 0207 935 5391.

Website address: www.odlqc.org.uk


Skill

This is the National Bureau for Students with Disabilities. Along with a regular newsletter, this organisation also provides help and advice on how to find appropriate courses, finance and support.

Address: 336 Brixton Road, London, SW9 7AA. Telephone: 0207 274 0565.

Website address: www.skill.org.uk



Other Support Organisations


National Association of Citizens Advice Bureaux (NACAB)

Address: Myddelton House, 115-123 Pentonville Road, London, N1 9LZ. Telephone: 0207 833 2181.

Website Address: www.nacab.org.uk




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